Resource Library

United States

State of Alaska Health and Social Services

To promote and protect the health and well being of Alaskians.

StarShine Hospice – Cincinnati Children’s

The StarShine Hospice staff at Cincinnati Children’s Hospital Medical Center provide various services to patients and families in cooperation with your child’s family and under the direction of your child’s physician.

Starlight Children’s Foundation

Starlight Children’s Foundation is dedicated to improving the quality of life for children with chronic and life-threatening illnesses and life-altering injuries by providing entertainment, education and family activities that help them cope.

SS/Disability Information from the Nat’l. MS Society

Although this is from the Nat’l. MS Society, their website has useful information regarding the Social Security Disability process. They also provide a helpful guidebook and sample letters from physicians to assist you in the application process.

Social Security Disability Facts

A government website explaining the faces and facts of disability.

Social Security Disability Benefits

A government website summarizing federal programs that provide assistance to people with disabilities.

Social Security and Disability Resource Center

The Social Security and Disability Resource Center website provides information on the federal government’s two disability benefit programs, title II social security disability benefits and title 16 SSI disability benefits.

Shadow Buddies

Shadow Buddies are condition-specific dolls designed to be a friend “just like me” for seriously ill or medically challenged children. Provide comfort to children, as well as effective method for educating newly-diagnosed children.

Rare Lung Disease Consortium

The Rare Lung Diseases Consortium (RLDC) is a network of physicians and patients working to accelerate clinical research and improve medical care for individuals with Rare Lung Diseases.

Rainbows

Rainbows, the world’s largest grief support organization, is an international non-profit organization that fosters emotional healing among children grieving a loss from a life-altering crisis.