Resource Library

United States

Project Sunshine

Project Sunshine is a nonprofit organization that provides free social, educational and recreational programs to children and families affected by medical challenges.

Patient Advocate Foundation

National non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis.

Partnership for Prescription Assistance

Organization that helps uninsured or low-income patients obtain low-cost or free brand-name medications.

Office of Rare Diseases Research (ORDR)

The Office of Rare Diseases Research (ORDR) at the National Institute of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community.

Office for Children with Special Health Care Needs – Arizona

To continuously improve comprehensive systems of care that enhances the health, future and quality of life for children and youth with special health care needs and their families.

Northwest Regional Spinal Cord Injury System – SSDI/SSI Info

Navigating the System: Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). Information from the NW Regional Spinal Cord Injury System

NJ Family Care

NJ FamilyCare is not a welfare program, but rather the State of New Jersey’s way of providing affordable health coverage for kids and certain low-income parents.

NJ Dept. of Human Services – State Subsidies for Childcare

Low- and moderate-income working parents can receive state subsidies for child care, including preschool instruction, after-school programs for children up to age 13, and care for children and teens with special needs.

New York State Hospital Report Card is a project reporting on quality of care and providing ratings for every New York State hospital on a wide array of procedures and conditions.

Needy Meds Scholarship

Searchable listing of scholarships that are offered for students with specific medical condition(s) or diagnoses.