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National Comprehensive Cancer Network Patient Resources
The National Comprehensive Cancer Network (NCCN) has published clinical guidelines for histiocytic neoplasms. While histiocytosis does not currently have patient guidelines, there are many great resources the NCCN provides. NCCN Guidelines for Patients, NCCN Patient Resource Card, and Questions to Ask About Cancer Care.
Rare Disease Resource Guide For Caregivers
2021 rare disease resource guide for caregivers published by Global Genes. It’s brimming with advice and resources for caregivers of patients with rare diseases.
Office for Children with Special Health Care Needs – Arizona
To continuously improve comprehensive systems of care that enhances the health, future and quality of life for children and youth with special health care needs and their families.
Arizona Life Lines
Helps find insurance for patients with pre-existing conditions