Posts Tagged ‘Advocacy’
A Flyers Histio Night Two Years in the Making
Slightly over a year ago, our former Communications Director started our first Histio Night at the Flyers in early 2022. Last week, we had the second annual Histio Night at…
Read MoreEpisode 025 – The 2022 HopeCast and Year End Update
On episode 25 of the Beyond the Diagnosis Podcast Kathy shares a replay of our HopeCast, originally broadcast on Giving Tuesday. Learn all about the accomplishments of 2022 and what’s…
Read MoreAdvocacy Series: Highlighting Rare Across America
As I mentioned in part one of our two part series on Advocacy, the role of advocacy in rare disease helps to ensure that policymakers and legislators know about challenges…
Read MoreAdvocacy: The Small Rock in a Big Ocean
Histiocytic disorders make up about six of the 7,000 rare diseases that exist today. When a condition is rare, it is unlikely that there will be federal funding to support…
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