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  • Understanding Histio
    • Overview of Histiocytic Disorders
    • COVID-19 Information
    • Hemophagocytic Syndromes
    • Langerhans cell Histiocytosis in Adults
    • Langerhans cell Histiocytosis in Children
    • Pulmonary Langerhans cell Histiocytosis
    • Erdheim-Chester Disease
    • Rosai-Dorfman Disease
    • Xanthogranuloma
    • Diabetes Insipidus & Other Related Conditions
  • Research
    • The Road to a Cure
    • Annual Funding Process
    • Registries & Clinical Trials
    • Grants Awarded
    • Funding Opportunities
  • Resources
    • Resource Overview
    • Histio Physician Directory
    • Resource Directory
    • Education & Connection
    • Scholarship Program
  • Who We Are
    • About the Association
    • Executive Director News & Blog
    • Impacting the Histio Community
    • Partnerships & Sponsors
    • Organizational History
    • Contact the Association
  • Get Involved
    • Donate
    • How to Get Involved
    • Raise Awareness
    • Fundraising Events
    • Other Ways to Give
    • Annual Campaigns
    • Job & Volunteer Opportunities
    • eStore
  • Donate
  • SUBSCRIBE
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Posts Tagged ‘Advocacy’

Advocacy Series: Highlighting Rare Across America

September 8, 2022
Advocacy-Series-Highlighting-Rare-Across-America-Blog-Image

As I mentioned in part one of our two part series on Advocacy, the role of advocacy in rare disease helps to ensure that policymakers and legislators know about challenges…

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Advocacy: The Small Rock in a Big Ocean

August 25, 2022
Advocacy Warrior throwing a rock to create a big wave

Histiocytic disorders make up about six of the 7,000 rare diseases that exist today. When a condition is rare, it is unlikely that there will be federal funding to support…

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