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  • Understanding Histio
    • Overview of Histiocytic Disorders
    • COVID-19 Information
    • Hemophagocytic Syndromes
    • Langerhans cell Histiocytosis in Adults
    • Langerhans cell Histiocytosis in Children
    • Pulmonary Langerhans cell Histiocytosis
    • Erdheim-Chester Disease
    • Rosai-Dorfman Disease
    • Xanthogranuloma
    • Malignant Histiocytosis
    • Diabetes Insipidus/Arginine Vasopressin Deficiency
  • Research
    • The Road to a Cure
    • Annual Funding Process
    • Registries, Clinical Trials, & Genomic Sequencing
    • Grants Awarded
    • Funding Opportunities
  • Resources
    • Resource Overview
    • Physician Finder
    • Resource Directory
    • Education & Peer Connection
      • Educational Videos
      • Webinars
      • Peer Chats
      • Regional Meetings
      • Beyond The Diagnosis Podcast
      • Yoga For Histio
    • Scholarship Program
  • Who We Are
    • About the Association
    • Executive Director News & Blog
    • Impact & Financials
    • Histio Ambassadors
    • Partnerships & Sponsors
    • Organizational History
    • Contact the Association
  • Get Involved
    • Donate
    • How to Get Involved
    • Raise Awareness
    • Fundraising Events
    • Other Ways to Give
    • Annual Campaigns
    • Job & Volunteer Opportunities
    • eStore
  • Donate
  • SUBSCRIBE
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Posts Tagged ‘Canadian Organization for Rare Disorders’

Industry Update from the World Orphan Drug Congress

July 25, 2022
Industry update from the World Orphan Drug Congress 2022

On July 11-13, I attended the World Orphan Drug Congress in Boston, Massachusetts. This congress has taken place for several years now and brings together people from all cross-sections of…

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