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  • Understanding Histio
    • Overview of Histiocytic Disorders
    • Hemophagocytic Syndromes
    • Langerhans cell Histiocytosis in Adults
    • Langerhans cell Histiocytosis in Children
    • Pulmonary Langerhans cell Histiocytosis
    • Erdheim-Chester Disease
    • Rosai-Dorfman Disease
    • Xanthogranuloma
    • Malignant Histiocytosis
    • Diabetes Insipidus/Arginine Vasopressin Deficiency
  • Research
    • The Road to a Cure
    • Annual Funding Process
    • Registries, Clinical Trials, & Genomic Sequencing
    • Grants Awarded
    • Funding Opportunities
  • Resources
    • Resource Overview
    • Physician Finder
    • Resource Directory
    • Education & Peer Connection
      • Educational Video Series
      • Webinars
      • Peer Chats
      • Regional Meetings
      • Beyond The Diagnosis Podcast
      • Yoga For Histio
    • Scholarship Program
      • Student Scholarship Program
      • Ingrassia Early Career Travel Scholarship
  • Who We Are
    • About the Association
    • Executive Director News & Blog
    • Impact & Financials
    • Histio Ambassadors
    • Partnerships & Sponsors
    • Organizational History
    • Contact the Association
  • Get Involved
    • Donate
    • How to Get Involved
    • Raise Awareness
    • Fundraising Events
    • Other Ways to Give
    • Annual Campaigns
    • Job & Volunteer Opportunities
    • eStore
  • Donate
  • SUBSCRIBE
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Posts Tagged ‘Candance Lightner’

Advocacy: The Small Rock in a Big Ocean

August 25, 2022
Advocacy Warrior throwing a rock to create a big wave

Histiocytic disorders make up about six of the 7,000 rare diseases that exist today. When a condition is rare, it is unlikely that there will be federal funding to support…

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