Posts Tagged ‘Histio’
32nd Annual Nikolas Symposium (Greek Histiocytosis Meeting)
In mid-May, I had the opportunity to once again attend the 32nd Annual Nikolas Symposium hosted by the Kontoyannis family and the Artemis Foundation (Histio Hellas) in Greece. The Nikolas…
Read MorePatient Centered – Rare Disease Led
The Patient Centered Outcomes Research Institute (PCORI)’s federally mandated Rare Disease Advisory Panel (RDAP) has been an incredible opportunity. For the last three (3) years I have served on the…
Read MoreFrom Greece, with Research: 39th Annual Histiocyte Society Meeting
Every year, the Histiocyte Society, a partner organization of ours, meets in a new location to share research and celebrate the achievements many researchers have made throughout the year in…
Read MoreHistio Letter Writing Campaign: A Remarkable Success!
Welcome back to the blog! After a month off while we took more time to bring awareness to histio, we are back and ready to tell you all about what…
Read MoreMeet the Histiocytosis Association Team!
At the Association, we strive to not just be a source of research and resources for our community, but to be a welcoming community in and of ourselves. As part…
Read More2022 Histiocytosis Association Research Grant Recipients
Our History of Research Funding At the very heart of the Histiocytosis Association is the steadfast commitment to finding a cure for histiocytic disorders. The Histiocytosis Association Research Grant Program…
Read MoreA Flyers Histio Night Two Years in the Making
Slightly over a year ago, our former Communications Director started our first Histio Night at the Flyers in early 2022. Last week, we had the second annual Histio Night at…
Read MoreIndustry Update from the World Orphan Drug Congress
On July 11-13, I attended the World Orphan Drug Congress in Boston, Massachusetts. This congress has taken place for several years now and brings together people from all cross-sections of…
Read More