Posts Tagged ‘Histiocytosis’
Ways to Advocate for Rare
Last year I talked to you about Rare Across America with two former participants, Drew Freedman and Leisa Greathouse. Now, we want to invite you to find something in rare…
Read MoreA Tale of Three Conferences
Here at the Histiocytosis Association we ended April strong and kicked the month of May off with a bang! Between all of us, we have attended three conferences in the…
Read MoreMeet the Histiocytosis Association Team!
At the Association, we strive to not just be a source of research and resources for our community, but to be a welcoming community in and of ourselves. As part…
Read MoreScoring New Research Proposals
This is an exciting time for the Association and its connections to the college and medical communities!! The Histio Student Scholarship application window just closed, and the next Research Grant…
Read MoreNational Institutes of Health: Partners in the Fight
With histiocytic disorders being rare, awareness to not only the medical community but also the government level of drug development, research, and health is important for the Histiocytosis Association team.…
Read MoreWild Zebras Running Free: Rare Disease Day 2023
“Look for horses, not zebras.” That’s what doctors often teach in medical school to those learning how to diagnose illnesses. Looking for the rare disease comes later. First, they are…
Read More2022 Histiocytosis Association Research Grant Recipients
Our History of Research Funding At the very heart of the Histiocytosis Association is the steadfast commitment to finding a cure for histiocytic disorders. The Histiocytosis Association Research Grant Program…
Read MoreA Flyers Histio Night Two Years in the Making
Slightly over a year ago, our former Communications Director started our first Histio Night at the Flyers in early 2022. Last week, we had the second annual Histio Night at…
Read MoreEpisode 025 – The 2022 HopeCast and Year End Update
On episode 25 of the Beyond the Diagnosis Podcast Kathy shares a replay of our HopeCast, originally broadcast on Giving Tuesday. Learn all about the accomplishments of 2022 and what’s…
Read MoreBreakthrough for Histiocytosis: Cobimetinib Approval by the FDA
You may have heard the exciting news, that on November 1st, 2022, Memorial Sloan Kettering Cancer Center (MSK) announced that the U.S. Food and Drug Administration (FDA) approved the oral MEK inhibitor drug cobimetinib (Cotellic®) for the treatment of adult patients diagnosed with histiocytic neoplasms (HN).
Read More