Posts Tagged ‘LCH’
2023 Histiocytosis Association Research Grant Recipients
Since 1992, because of your generosity and dedication, the Histiocytosis Association has granted over $7.5 million for research projects in 14 countries – that’s 211 projects, 7 clinical trials and…
Read MoreFrom Greece, with Research: 39th Annual Histiocyte Society Meeting
Every year, the Histiocyte Society, a partner organization of ours, meets in a new location to share research and celebrate the achievements many researchers have made throughout the year in…
Read MoreHistio and MSK – Involved and Supportive
As a patient advocacy organization, the Histiocytosis Association is no stranger to working closely with hospitals or medical organizations within the US and around the world. In fact, we work…
Read MoreEpisode 025 – The 2022 HopeCast and Year End Update
On episode 25 of the Beyond the Diagnosis Podcast Kathy shares a replay of our HopeCast, originally broadcast on Giving Tuesday. Learn all about the accomplishments of 2022 and what’s…
Read More8 Years of International Collaboration from Seed Funding
Collaboration noun. – The action of working with someone to produce or create something. A common part of our daily lives, and a critical part of advancing research for histiocytosis…
Read MoreAdvocacy: The Small Rock in a Big Ocean
Histiocytic disorders make up about six of the 7,000 rare diseases that exist today. When a condition is rare, it is unlikely that there will be federal funding to support…
Read MoreAdvocacy Groups: A Powerful Network of Support
We speak to patients and families every day; brave, strong, resilient individuals who share their histio journey. The families and physicians we connect with are from all around the world…
Read MoreIndustry Update from the World Orphan Drug Congress
On July 11-13, I attended the World Orphan Drug Congress in Boston, Massachusetts. This congress has taken place for several years now and brings together people from all cross-sections of…
Read MoreBattle of the Warrior Ambassadors
We do not always understand why we face immense challenges in life. These challenges take many shapes and sizes from not receiving that acceptance letter, to losing a loved one,…
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